filling the silence in the motherhood discussion
This week’s topic is for those of you who arrived here via the infertility route.
Do you feel you were left hanging by the fertility industry?
Okay, I know that’s a loaded question, so if you don’t feel like jumping in on this topic, or if it doesn’t apply to you, feel free to bring your own whine to the party this week.
By Lisa Manterfield
If you’ve dealt with infertility, odds are you’ve had experience with the fertility industry. You’ve also probably come to realize that the glossy brochures and promises of miracle babies are only a small part of the whole story.
I had my first experience with a fertility clinic about a year after we started trying to conceive. Without ordering any kind of tests to root out the cause of our fertility issues, this particular doctor tried to shunt us into a series of invasive and expensive IVF treatments. Only later, when we finally found our way to a more ethical doctor, who conducted a string of tests to get an accurate diagnosis, did we learn that IVF would not have been an appropriate course of treatment for my condition. I can only imagine the heartbreak we would have endured—not to mention the tens of thousands of dollars and unnecessary hormone shots—had we blithely gone along with the first doctor’s scheme.
I don’t use the word “scheme” lightly in this case. Looking back, I do not feel that this man was practicing medicine. He was running a highly profitable business and picking up desperate clients at their most vulnerable. Lest anyone think I’m being paranoid (and I doubt many on this site would) this clinic is now under investigation for unethical practices. I’m only glad we crossed paths while I was still “hopeful” and hadn’t progressed to “obsessed”, and we still had the wherewithal to sniff out a rat and run. I am sure that hundreds, if not thousands, of couples were not so lucky. Hopefully this man will be brought to account soon.
That’s my story and I know that many of you have similar stories of slick marketing and misleading statistics. For most of us here, IVF and its related treatments, do not hold the secret elixir to motherhood. And yet, it’s still perceived as the surefire way for the infertile to make their dreams come true.
Now, my dear friend Pamela Mahoney Tsigdinos is working to rectify this misinformation. You probably already know Pamela from her website, Silent Sorority, and her book of the same title. Pamela has just launched a new project and she needs your help.
Pamela is on a mission to unmask the truth about IVF and the fertility industry, and to provide a reliable resource for people considering fertility treatments. The site will provide studies and accurate statistics, along with real stories of people who have undergone treatment. And that’s where you come in.
If you’ve undergone IVF and would like to share your story and experience with Pamela and her team, please take a look at her new website, ReproTechTruths. You can contact her there or email her directly at info [at] reprotechtruths [dot] org.
I hope you’ll help contribute to this important conversation.
As told to Kathleen Guthrie Woods
Zoe’s turning point came during “an excessive attack of the googles,” when she came across a woman on a fertility board with the same stats. Upon closer inspection, Zoe realized the woman had posted seven years earlier, and had endured nine IVF failures since. “I did not want to be that woman,” she decided then and there.
But deciding to stop unsuccessful treatments and making peace with a life without babies are different things. Zoe quotes John Cleese: “I can take the despair. It’s the hope I can’t stand.” In her own words, Zoe says, “Clinging onto hope was not something I was prepared to do indefinitely. I wanted to walk away with my sanity intact.”
Here’s her story.
LWB: Describe your dream of motherhood.
Zoe: I always said I’d have a toddler by the time I was 30. My dad used to joke that would mean I’d have to give birth at 28, so get pregnant at 27, be in a relationship by 26, and that I was saying this whilst aged 26, and it “obviously isn’t going to be that moron in the baseball cap you brought round last week, so you better start looking”.
I dreamt of filling a child’s life with music (both myself and my partner are musicians), books, wellies, dogs, silly humour, and doodles. I’d also always been positive about adopting. My parents fostered many kids before we came along, so that was part of my dream too.
LWB: Are you childfree by choice, chance, or circumstance?
Zoe: Circumstance. I always went out with guys who weren’t ready, and I respected them. I was in a long-term relationship from 26, stopped taking the pill at 30. He responded by forcing me to take the morning-after pill when he forgot to use a condom. That devastated me. Then two weeks shy of my 33rd birthday, he just left, saying he didn’t love me, wasn’t ready for kids and wanted to “free me up”. He is now a father of one with the girl he got with three weeks after leaving me.
I got with my future husband pretty quickly after that—we’d been friends for years. He’d had an undescended testicle till aged 12, and two years in, we confirmed he had very low sperm count and IVF ICSI was our only option. Six months later, when I was just 36, we found out I had Diminished Ovarian Reserve (the ovaries of a 45 year old) and wouldn’t respond to IVF. Double whammy. He can’t have kids without IVF, I can’t get pregnant with it. We did it anyway. It failed drastically.
We don’t want double donor. I have my own very clear feelings about that, and it feels good to actively make a decision together against it. I would adopt, but my partner won’t, and I have chosen a life with him.
LWB: Where are you on your journey now? (for example: still in denial, angry, hoping for a miracle, depressed, crawling toward acceptance, embracing Plan B)
Zoe: Never in denial, as I always thought we’d have a problem and have been pretty realistic the whole way through. I moved from anger (at my ex-partner, who I now realize took the only fertile years of my life) into depression. Currently trying to convince myself of Plan B. Every day I take a huge amount of physical and emotional effort, convincing myself that this is okay, I am okay, a life without children will be okay. Every morning all the hard work I did the day before, getting to a place of acceptance, has vanished, and I have to start convincing myself all over again.
LWB: What’s the hardest part about not having children?
Zoe: The constant exclusion from life’s milestones. I never wanted to live like a 20-something forever. I wanted a family life and all that entailed.
Also I’m particularly upset about the fact there will be no one there to bother about what I leave behind. My legacy, I suppose. I have hundreds of recordings of me singing and playing songs, scrapbooks of band tours I’ve been on, photos of achievements I’ve made, venues I’ve played, and no one to listen to them or read them or look at them when I’m gone. I was looking forward to the exciting “this is what mummy used to do before she had you” conversations.
LWB: What’s one thing you want other people (moms, younger women, men, grandmothers, teachers, strangers) to know about your being childfree?
Zoe: That it wasn’t planned. That it wasn’t my fault. That it’s not a normal thing to go through at 36, and that I am broken with grief and would be grateful for their understanding on that.
Rather than what I want other women to know though, I want to speak to men in their 30s. I want them to know that their decisions to love their girlfriends/wives, but yet dismiss their requests to start a family because they are not ready, until they are 40 in some cases, is not something women should have to bear. We are not being mental or unnecessarily naggy. We are legitimately worried that it will be too late. Men should bear some of this responsibility, they should meet us half way.
LWB: What’s your Plan B?
Zoe: Being an aunt to my one and only niece/nephew, who was conceived at the point I found out I couldn’t have children naturally and was born a few weeks after I found out I can never have children at all.
Getting married, with the knowledge I have already been through one of the hardest things you can go through with a partner, and starting off with the understanding that it will be a marriage without kids. But I am so glad I know this from the outset and am still choosing to do it. That feels empowering to me.
What is your Plan B? Or are your wounds so raw that you can’t even imagine a happy future? We can all benefit from hearing about your experiences, plus we’d like to support you. Please visit the Our Stories page to get more information and the questionnaire, and consider sharing your story with women who truly understand what you’re going through.
Did you know Kathleen Guthrie Woods is getting ready to tell her own story? The Mother of All Dilemmas follows her journey of pursuing being a single mother then embracing a life without children, and explores the reasons our society still presumes to calculate a woman’s worth based on whether or not she’s a mother. Keep an eye on LifeWithoutBaby.com for announcements about the book’s release.
As told to Kathleen Guthrie Woods
“I am on the swim up, but I haven’t broken the surface yet,” Lynn* says, in answer to where she is on her journey. “At the same time, I feel scared to break free of it, to let it go. I feel stuck; I’m scared to turn the corner.”
Now 41, she’s been on the infertility/ran out of time rollercoaster for several years. Although she’s starting to make peace with her path, she continues to wrestle with the heartbreaking losses of the dream of holding her newborn and looking into familiar eyes in a new face, the memories that will never be made, and “all of the love that I have to give to that child that will never be given.”
Yet she continues to look for hope. “Some people come out the other end of this situation and say that they now know how strong they are, and that they can get through anything,” she says. “What I am learning is that I can survive, and that it’s okay to feel all of it. It’s even okay to be weak sometimes.”
After reading her story, I hope you’ll reach out to her in the comments. Perhaps you can share with her your own answer to the last question.
LWB: Describe your dream of motherhood.
Lynn: I can’t honestly say that I spent my younger years yearning to be a mom like so many women do. I did want children, but it always seemed like a goal for the next phase of my life: when I was a little older, when I had a better job, when I had a husband, etc. I had a long-term boyfriend in my early 20s, and I wanted to get married and start a family, but he was not interested. I did finally leave him and spent the next 10 years being very single. By the time I was in my mid-30s, I was overwhelmed by the desire to be a mom. I had spent so many years concentrating on my job and dating, but I felt no purpose in my life. Most of the men I dated were a mess, and I started to doubt that I would ever find something real. I met my husband when I was 38, and he was definitely worth the wait. We started trying to get pregnant even before we got married, then quickly learned it was not going to be an easy road for us. We did all of the drugs, intrauterine insemination (IUI), and then in vitro fertilization (IVF).
LWB: Where are you on your journey now? (for example: still in denial, angry, hoping for a miracle, depressed, crawling toward acceptance, embracing Plan B)
Lynn: Can I be all of these things at once? (LOL) I guess I am crawling toward acceptance, but still struggling with a little bit of depression. And I would be lying if I said that I didn’t harbor a secret hope for a miracle way down deep inside of me.
LWB: What was the turning point for you?
Lynn: Not sure I have totally hit that yet, but we did a round of IVF a little over a year ago. They were only able to harvest one egg, and although it looked good at first, it didn’t end up taking. We have thought about using an egg donor, but my husband is not willing to put us in $25,000 worth of debt to do it. At our age, we wouldn’t have that paid off until retirement (if we were lucky enough to pay it off at all).
I had an early miscarriage a few months ago. It was the first time in my entire life I had ever been pregnant. It came and went quickly, and it has been awful. I had just started down the road to acceptance, and then it happened. After fighting the anger, depression, and heartache of not being able to have a child, there is a part of me that wants to come up out of the depths of all of this and see what the next part of my life is going to look like.
LWB: What’s the best advice you’ve received?
Lynn: My husband and I are seeing a counselor, and she told me that I am grieving and that it’s so important to try to channel the emotions I have into something healthy and constructive. I have been journaling a lot, and it seems to be helping.
LWB: What advice would you like to give to your younger self?
Lynn: Be aware of your fertility and be proactive about it at an earlier age. Don’t just assume that you have forever to make it happen or that because celebrities have children in their 50s or your aunt’s cousin’s mother got pregnant when she was 47 that you can too. It’s harder than you think, and much harder than we are led to believe by our culture and media.
LWB: How has LWB helped you on your journey?
Lynn: The honesty and empathy shown here is everything. When I read women’s stories and read your posts, I don’t feel alone. Thank you for that.
LWB: What is your hope for yourself this coming year?
Lynn: That I could reach past the survival phase and reach a place where I can thrive. I want to find myself again. I feel like my personality, my “mojo,” has been lost through all of this. I hope my husband and I can start to embrace our lives and celebrate that we found each other. I want us to fully enjoy the rest of our lives together.
LWB: What’s your Plan B?
Lynn: I don’t have one. However, I am in the market for one if you know where I can find one. 🙂
*We allow each contributor to choose another name, if she wishes, to protect her privacy.
What is your Plan B? Or are your wounds so raw that you can’t even imagine a happy future? We can all benefit from hearing about your experiences, plus we’d like to support you. Please visit the Our Stories page to get more information and the questionnaire, and consider sharing your story with women who truly understand what you’re going through.
Did you know Kathleen Guthrie Woods is getting ready to tell her own story? The Mother of All Dilemmas follows her journey of pursuing being a single mother then embracing a life without children, and explores the reasons our society still presumes to calculate a woman’s worth based on whether or not she’s a mother. Keep an eye on LifeWithoutBaby.com for announcements about the book’s release.
By Kathleen Guthrie Woods
I love my gynecologist. She’s smart, she’s about my age, and like me, she’s childfree. So, yes, I believe she “gets” me.
That’s why it continues to gall me that her office still doesn’t “get” how devastating each of my visits are. I make a point of not making eye contact with anyone else in the waiting room. I don’t want to know—I don’t want the possibility of sensing—that the woman sitting across the room from me is in the full bloom of pregnancy. I also don’t want to know if the woman four seats over is falling apart because she’s about to get confirmation that another round of fertility treatments has failed to produce a longed-for baby. Honestly, I have enough on my plate just keeping my own emotions in check as I telepathically beg the nurse to call my name next.
And I’m pretty successful until I walk past the gatekeeper and enter the hallway where I’m once again faced with The Wall.
Technically, it’s one long wall with three bulletin boards overloaded with healthy baby and family photos. Hello, knife to the heart! There’s no avoiding it. It’s literally IN MY FACE as I make my way to the scale, then to the ladies’ room, then back into the hallway and to the exam room. I get one last look as I head out, and I typically manage to hold myself together as I ride down the elevator (sunglasses on, just in case), exit the building into the glaring sunlight, and all but crawl into my car where I let it all go.
Failure. Loser. Incomplete Woman. Freak of Nature. These are all the labels I give myself as I process my annual confrontation with The Wall.
With this being National Infertility Awareness Week, I wish my doctor and her staff could be more, well, aware. For the sign on their office does not read “Health Care for Mommies Only” or “Doctor of Pregnant and Breastfeeding Women”. It’s supposed to be an office that provides health care for all women. Although my reproductive system may have exceeded its best if used by date, I am still going in for my routine physical checkups, I continue to be a paying customer, and (dangit) I’d like to be represented on The Wall.
So, here are my suggestions:
I hope that I’ll see some changes on The Wall when I go in for my next checkup. But honestly, I don’t know if I’ll have the courage to look.
Kathleen Guthrie Woods is a Northern California–based freelance writer. She is mostly at peace with her childfree status.
As told to Kathleen Guthrie Woods
“I think I have not yet healed as much as I would like,” Janey wrote to me in her cover letter. She first filled out our questionnaire for this column in early 2015, just a year after she ended her 17-year-long IVF journey—one that included six unsuccessful IVF cycles, a miracle natural pregnancy and heartbreaking miscarriage, and an ectopic pregnancy with a donor egg that required emergency surgery. I wept as I read “A lifetime of longing and waiting was literally ripped from us in under an hour.”
This past November she turned 48, the cut-off age for possible treatment with donor eggs and the final “no” to any possible miracles. With her wounds still so very raw, she decided to send in her story. “I would so love not to feel a tightening in my throat when others make announcements or speak of their pregnancy/toddlers,” she wrote. “I hope sharing my story helps others and me in finally letting it all go.”
That’s my hope, as well.
LWB: Describe your dream of motherhood.
Janey: I’ve wanted my own baby as long as I can remember. I recall being envious of my older cousin when she was pregnant with her first; I was about eight. I asked my mum constantly to have a younger brother or sister. I dreamed of watching a child grow, nurturing, going to the park, cooking for him/her, and just wanting them to grow up balanced, loved, and feeling important and happy.
LWB: Where are you on your journey now? (for example: still in denial, angry, hoping for a miracle, depressed, crawling toward acceptance, embracing Plan B)
Janey: Crawling toward acceptance. I still feel all the other emotions on a daily basis and cannot quite believe a lifetime of yearning and waiting has ended this way.
LWB: What was the turning point for you?
Janey: After 17 years, being told I needed an operation to check out my remaining tube. I felt sick at the prospect of more treatment that would still only offer a slim chance of success. I think I lost my faith that day, and I could no longer hide behind “any statistic however low was better than no chance”. That pain was rock bottom for me and my husband, for we cannot knowingly go further into that desperately sad place that we have been so many times before. Then, when I told my husband the clinic had called to offer us another donor, I saw hope dance across his face momentarily, instantly followed by a darkness that drained him of all his colour. I saw a physical shadow cast across his features, one of anger, sadness, and terror. This is what I recall whenever I feel weak.
LWB: What’s the hardest part for you about not having children?
Janey: Not having the day-to-day joy/struggle that is part of everyone’s life. No first words, school days, birthday parties. The pride as they grow in life and leave school, get work, meet partners. I can recall the pride I see in my mum when she talks of me or my brother. I broke down recently when she was at the hospital with her hip replacement and was asked, “Who do we call if you have a problem?” Answer, “My daughter, Jane.” I will never have that, not ever.
LWB: What’s one thing you want other people to know about your being childfree?
Janey: That it was not a choice, I am not free. I deal daily with the disease of infertility and the sadness of not ever being able to hold and nurture my own child. I constantly put my feelings aside and congratulate others, and I would love for the fertile world to acknowledge the devastation of infertility and the lasting impact.
LWB: How do you answer “Do you have kids?”
Janey: “No. Life has not gone to plan on that front, and I’m unbelievably sad about it.” By the time I got to being able to respond this way, I realized I was too old for people to ask; they generally assume I have them and they have left home by now. It feels easier to leave it that way. I think I said it once to someone, and they were momentarily understanding. It felt liberating at the time and a step forward towards acceptance.
LWB: How has LWB helped you on your journey?
Janey: Finally seeing that my feelings over all these years are normal. I have experienced so much jealousy and anger at the world, and it was wonderful to have that validated and not to keep forcing myself to face people or situations that leave me drained. LWB has allowed me to feel quite a lot of pride in myself for getting out of bed and going to work and finding the good in myself. This is not all there is to me. I am whole and I am enough.
Where are you on your journey? Are your wounds raw? Have you made some progress toward accepting a life without children? We can all benefit from hearing about your experiences, plus we’d like to support you. Please visit the Our Stories page to get more information and the questionnaire, and consider sharing your story with women who truly understand what you’re going through.
Did you know Kathleen Guthrie Woods is getting ready to tell her own story? The Mother of All Dilemmas follows her journey of pursuing being a single mother then embracing a life without children, and explores the reasons our society still presumes to calculate a woman’s worth based on whether or not she’s a mother. Keep an eye on LifeWithoutBaby.com for announcements about the book’s release.
A while ago, I asked you to share topic ideas for Whiny Wednesday. Quite a few of you were glad to oblige. Thanks for the great ideas. If you’d like to suggest a topic, please leave it in the comments below. (Add ** so I can easily find it, please.)
This week’s Whiny Wednesday topic is this:
Other People’s Pity
As always, you’re free to vent on your own topic, too.
Happy Whiny Wednesday! I hope you’re doing okay today. If not, this is the place to get it off your chest.
This week we turn to spotlight on the men in our lives and discuss the topic of:
Spouses or partners who aren’t dealing or healing
If you have one of these, we’d like to hear to about it.
Thanks for not rebelling after last week’s missing Whiny Wednesday post. This week’s topic is for those of you who arrived here via the infertility route.
Do you feel you were left hanging by the fertility industry?
Okay, I know that’s a loaded question, so if you don’t feel like jumping in on this topic, or if it doesn’t apply to you, feel free to bring your own whine to the party this week.
By Lisa Manterfield
I’m going to say this up front so I can get it out of the way: I really didn’t want to read any more books about infertility.
Like all of us here, I’ve worked hard to heal the wounds of my own infertility so that I can step out into a world full of mothers and children and not feel as if I’m about to suffocate. Reading other people’s stories played a big part in my recovery. I’ve done the work and the result it that life is pretty good these days, even without children of my own.
I am also aware that the hurt has not really gone away. It lurks under the surface, moving deeper year-by-year, granted, but always there. I’ve avoided reading more infertility stories because I don’t want to go back to those treatment rooms, those times of frustration, and that deep, dark sadness of being unable to create life. Even writing this last sentence reminds me of where I once was. So you see where my reluctance comes from.
But recently, Pamela at Silent Sorority asked me to participate in a blog tour for Julia Leigh’s memoir, Avalanche, A Love Story. Of course, I agreed. While our “sorority” may have been silent when Pamela wrote her book almost a decade ago, this is no longer the case. (You can see the growing list of bloggers who agreed to participate in this post.) We are vocal, we are sharing our stories, and we are supporting one another.
Despite our willingness to speak and write, there remains much ignorance and misunderstanding surrounding infertility. It’s what prompts pitying looks from people who ask if we have kids, and it prompts all the platitudes and hurtful comments we hear, falsely labeled as “helpful.” My personal favorites are “Just do IVF”, “Why didn’t you just adopt?”, and “You can’t have really wanted kids if you gave up so easily.”
Which is why we need to support authors like Leigh, who are willing to risk (and receive) judgement and pity because they crossed their own lines in the pursuit of motherhood. It’s important that women facing the possibility of fertility treatments find honest accounts of what it really entails (even if they choose to believe it will be different for them!) And it’s important that others who have no experience with infertility get to read a compelling story and perhaps gain insight, understand, and most of all, compassion. It’s why I sucked it up and bought and read Avalanche: A Love Story.
The book is short (I read it in two sittings) but powerful and beautifully written. It did indeed take me back to many of my own experiences, and at times I found myself wanting to yank her aside and impart my hard-earned wisdom on her. So many times I begged her not to make the choices she was about to make, but understanding how quickly logic and decision-making skills warp in the infertility world. By the end, I found myself connected to another infertility sister and understanding myself a little more.
I’ll be posting my full review on Amazon. If you decide to read the book, I encourage you to also leave a review. Word-of mouth is still the number one way most of us find books, and second only to buying books, reviews are the best way to support an author.
Pamela is hosting a blog tour for Julia’s book today. You’ll find a list of the participating bloggers here. I hope you’ll take a moment to visit some of them and perhaps find some new voices.
P.S. I know this post has replaced the usual Whiny Wednesday spot, but I think there’s enough in here to prompt a little outrage. Whiny Wednesday will be back next week.
~ "a raw, transparent account of the gut-wrenching journey of infertility."
~ "a welcome sanity check for women left to wonder how society became so fixated on motherhood."
